Praise Jesus!

What an epic week Daisy’s having! I want everyone to know this, Daisy has so much energy, hasn’t barfed or complained of feeling pukey, no bone pain, just amazing, creative, feisty fun and love coming from her! We truly believe this is because of the power of Jesus through prayer and we are so thankful. When your baby has cancer, at least the days can still be fun and worry not be the seasoning of your days… Yesterday she built a pirate ship in her room, complete with a treasure chest full of midnight pirate snacks, sleeping bag (she spent the night in it) and lots of “aaargh”-ing. She deeply contemplated getting a monkey for a pet because that seems very pirate-y and the added bonus that “pet monkeys don’t fling poo like wild monkeys”. I considered her reasoning well thought out, but alas, my answer was no.

Here’s how we’re looking for the next couple of weeks:

We have big choices to make, and most of those big choices hinge on the results of her CT scan, scheduled for Friday September 3rd. We need wisdom, discernment, and confidence in our decisions. When you relapse, your treatment isn’t as cut and dried as the first time around. We are educating ourselves on our options as much as possible, praying and thinking our way through all of it. Pray that we make good choices for her.

If her CT shows the tumor has shrunk enough to resect, that thing is outta here! We will then have the tumor cryopreserved and sent to Israel to have a vaccine made from it which she will get when her treatment in LA ends. If her CT shows no shrinkage, they pull out even bigger Chemo guns. We are expecting shrinkage, praying for it, but this is what happens if that bugger of a tumor won’t budge. So, we’ll cross that bridge IF we come to it.

I have to say that although we know that her prognosis is poor, it has actually given me more hope. My hope in the last year has found many targets, a 90% cure rate the first time around, good health care, a Wilm’s relapse specialist, and Israeli technologically advanced medicie, but the bullseye is my God. He heals the lame, gives sight to the blind, raises the dead. He gives, He can take away, but He alone is where our hope lies. It’s a total relief, to be honest.

I just finished reading “Chasing the Dragon” by Jackie Pullinger, reminding me that the same Jesus who touched so many so long ago touches so many today. Page after page, I read about precious hurting people miraculously healed of so many afflictions. People who had made a mess of their lives, imperfect, selfish, sinful people. Kind of like me. He is so able… I’ve also read of Job, who endured much earthly pain, all while not understanding the reason or purpose. I don’t understand either…. Who can know the mind of God? He is so much bigger, so much more powerful, so much more… gnarly.. than I can even fathom. That’s whose hands Daisy’s life is in. We deserve nothing from Him, yet receive so much. Wow…